Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts

Sunday, June 07, 2009

Under Ground with Ephraim

Wednesday, a few weeks ago, my mother, Ephraim, and I went to Hadassah Hospital on Mount Scopus. The children's outpatient surgery unit (which they call Day Care) is underground. You go down just a bit, but it's easy to see that there are no windows. After we checked in with Dafna the nurse, we started to meet the other parents.

Ephraim was there to have an abscess removed. Two children were having hernias repaired, another child was there to have a lumbar puncture. Another was there to have a biopsy taken of his muscle. There were religious Jews, non-religious Jews, and Arabs dressed in different levels of religious garb.

And then there was Tito. My mother and I had just seen the art therapist who had explained that we would be spending the day there so that the children having surgery the next day could learn about the process. I was lying on Ephraim's bed - he was lying in his stroller - reading a book.

There were a few young women there, volunteers from Betzalel, Israel's best known college of arts. They were using modeling clay. One made a giraffe, another made a pregnant woman, bent over backwards. Children sat at the table, requesting shapes.

Tito, though, was something different. Tito had a red nose, suspenders marked with inches like a measuring tape, and pants that showed boxers underneath. Tito held three roses. Ephraim was sleeping, but Tito didn't ignore me or my mother. He talked to us.tito the clown at hadassah hospital mount scopus

When Ephraim woke up, Tito amused him by blowing bubbles and by making a balloon jump in Ephraim's tiny hand. I talked to Tito. Some of those near and dear to me are quite clownish, and one of my favorite brothers (I have 3 favorites) has been known to put on a red nose and head for hospitals himself. Yaakov isn't quite a clown, but he does a fair bit of clowning in his show. Moreover, a good friend of his, Charlie is a bona fide clown, and he did some serious(?!) clowning at our wedding.

Thursday morning, we arrived at the hospital at 7:30, got coffee (awful) and pastries (decent) and went to the children's "day care" unit. We were greeted by Dafna, the nurse. Ephraim and some other children had their temperature taken. One of the children dropped his thermometer and there was some discussion of cleaning up the mercury.

Then, two by two, Dafna sent us up to the operating room. We waited in the OR waiting room for a long while, and the doctor came to take a boy to the operating room. His mother went into the room with him to stay with him until the anesthesia took. She came out, shaky. We tried to talk. After a while, her son was taken to the recovery room, and the doctor took Ephraim and me to the operating room. I lay him on the table, and the anesthesiologist put the mask on his face. I sang into Ephraim's ear and held onto him as he wiggled around and then stopped wiggling. They told me to wait outside.

I went to the family waiting room, and tried to read. I pumped some breastmilk for Ephraim, remembering that last time he had surgery, he couldn't nurse for quite some time. I went to get something to drink, and when I came back, my mom was gone. I went to find her in the recovery room, and she was already feeding Ephraim my milk.

She finished feeding him the little bit I'd pumped, and then I held him, nursing him. He was able to suck, unlike the previous time. He was very calm in my arms, very quiet, but he was nursing.

We waited for a long time, and they sent us back down to the basement where the children's outpatient surgery ward is. We talked to other parents there, and we waited for Ephraim to be able to come back home.

ephraim goodman after surgery

Thursday, February 19, 2009

Ephraim Update

Ephraim and I are home now. Ephraim seems to be back to his cute, cuddly, constantly-eating self.

The surgery accomplished what it was supposed to. That is, the surgeon removed the lens, which had a cataract and the scarred portion of the vitreous.

While he was doing the surgery, he saw that the retina is severely underdeveloped. He called in a retinal specialist who agreed with that assessment. As a result, they do not expect Ephraim to have vision in his left eye.

We have a followup appointment on Monday which will probably deal with the cosmetic issues of the problem - the cross-eyedness and the fact that the affected eye is smaller.

I've talked about this about as much as I can take, so please...

I will say that we are coping and we're not worried about Ephraim. We love him very much and are glad that he came through the surgery well. Of course, we're disappointed that vision is unlikely in the eye, but we know that people can live happy, healthy, good lives with vision in only one eye.

Friday, February 13, 2009

A Request

I've hesitated to write about this. Ephraim was diagnosed with PHPV in his left eye. (Click the link for details - I've explained it too many times, and it kind of makes me sick to talk about it.)

He will be having surgery, G-d willing, on Tuesday Feb 17th. I will be with him at Tel Hashomer hospital in the eye clinic Monday-Wednesday, assuming all goes well.

For those interested in such things, the doctor performing the surgery will be Professor Shpirer.

My request is for your prayers. His name is Ephraim Joshua. For those doing the typical Jewish thing, it's Ephraim Yehoshua ben Leah Gavriela or, in Hebrew, אפרים יהושע בן לאה גבריאלה.

Anyone who wants to offer more tangible support, I will probably be alone in the evenings, and would appreciate visitors (if you're in the neighborhood) and phone calls (if you have time).

Thank you everyone,
t.c.